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Location: st helens, merseyside, england How did you find this website? looking for advice on acc Comments: i have a 10yr old boy with acc, and find it really lonely as there is no one else within a 200 mile radius who seems to have this condition..x --------------------------------------------------------------------- message from Sandie (guestbook owner): Hello Vicky, Thank you for taking the time to sign the guestbook. I am also the parent of a son who has ACC. He is 18 years of age. We live in the USA. I am very sorry to know that you are finding it really lonely and that you have no support from people in your immediate area where you reside in England. Please be advised that I will be sending you some information today through e-mail pertaining to ACC and Education & Social Skills Challenges as well as ACC support group information for your review. I'm unsure of the specific advice you are seeking on ACC. If you should have any questions or if you would like to share your concerns, or if you might be comfortable sharing more about your son...please feel free to e-mail me anytime. Sandie e-mail: hope@aracnet.com
Location: Grass Valley, California How did you find this website? through a friend of my daughter-in-law Comments: My son called to let me know that they had received the news from the doctor after viewing the MRI that my son and daughter-in-law's, second child/son due in Sept. has ACC...they will know more in a few days. We are all full of hope and want to know EVERYTHING we can, so we will be prepared. I cannot wait to hold him and tell him how much he is loved. Thank you for this site. Grandma Julie
Location: Brasil How did you find this website? google Homepage: http://umamaeindesistivel.blogspot.com.br/ Comments: Olá sou brasileira, mãe de uma menina com DCC, descobrimos a pouco tempo, em busca de compartilhar informações e trocar experiências criei a página https://www.facebook.com/AgenesiaCorpoCaloso através dela fui encontrando algumas mães de crianças com ACC, porém todo conteúdo na internet sobre ACC é muito vago, e decidi procurar por página em inglês e foi assim que encontrei seu site, gostaria muito de ter mais informações com mães mais experientes principalmente sobre como educar minha filha, espero ser o início de uma amizade! Imoni Braz a mãe da Juliana
Location: Vermont How did you find this website? Searching for information on my sons new diagnosis http://www.acc-community.com/forum/viewtopic Comments: My son is 4 1/2 years old and has had developmental delys since i can remember he never hit mile markers like his younger sister has he doesnt speak more than a hand full of distorted words. We went to Dartmouth in Lebanon NH for and mri and i sat and waited for a week still waiting for blood work and was told my son has CACC. I read your "What to expect" and realized this was what ive been going through vor years without a single clue to it being this severe. Im still unsure of my sons future hes in speech therapy occupational therapy has a speech pathologist and is just starting kindergarten this fall. His cousin is in his class and she talks all the time and i see them play together. :'( Ive seen my son bulied had people call him retarded because he is different. I never imagined a diagnosis of this scale never i just thought we had alot of development to catch up on. I am my sons only advocate im a single mother of two beautiful children and one is very unique and special and to see people look at him the way they do tears me up i lay in bed at night wondering why my son why does he deserve this why did god do this to him. Ive questioned before the diagnosis if it was something i was doing wrong and if i could have done something different in his life it wouldnt be like this for him. Im absolutely blank and empty to know there is no one and nothing i can blameor begin to fix. Jaymeson is my angel as his sister Malia-Raisa is too and yet i dont know how to put him back together how to make him all better its not a boo boo mommy can kiss and make all better its not something i can look pastandhope it gets betteri can only pray all that i dois right for him and i doall ican within my power and ability is enough. Please ill take any and all advice i can get i myself am still unsure of what will happen in the future i feel so lost so out of control and helpless. |
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