Create a Website Forum or Website Chat Room for your website.
 

Guestbook

[Sign Guestbook]

42 Entries
Michael Email
03/30

Location: Idaho

How did you find this website? Knowing Alex website

Comments:
Hi, I love your site! My son has C-ACC. He is 25 years old and doing wonderful.With that said it has been a long hard fought for 25 years. When we found out about him having C-ACC it was Jan. 1993 and there was no web to search and MRI scans weren't widely used so the number of reported cases was so rare we had no data. Michael had many other health issues, learning issues and challenges and we dealt with them and this one as best we could. We relied on our GOD our family and some wonderful Dr.'s. Michael is doing very well and in college now (that has not been easy) and we have learned to love him support him and cherish all the accomplishments he has. We know how lonely and scary this road can be for parents as well as these kids and if anyone would like to talk or need support we are here for you, feel free to e.mail us @ sheriesabo@hotmail.com Thank you so much for you blog.
Sherie

Darla Quesenberry Email
12/06/17

Location: St. Louis, Missouri, USA

How did you find this website? internet search for absence of Corpus Callosum Info.

Comments:
Loved reading your page.   I have a 46 year old daughter, with absence of Corpus Callosum, so can relate to most of the stories.  We currently have some legal issues, since she developmentally has been trying to be an independent adult, because state says she cannot be independent...so guardianship issues have evolved, but praying for a productive decision soon, to have her back under my care.  Would love to hear from any ACC persons or their parents, and will respond to questions as best I can.   I Just found this group, and have always wished for such a group, since daughter Jackie has been born.   We always felt like a  "lonely...only" out there, with no knowledge of others with like disorders.  The doctors  usually told us we were on our own when we had questions, but usually agreed to help us seek answers, with us giving input and particulars on any situation.  Perhaps we can assist other younger persons on this same road.  

sophie collin Email
11/10/17

Location: california

How did you find this website? online

Homepage: http://bit.ly/2yKCHog

Comments:
Skin After Weight Loss As you do decrease that bodyweight and your epidermis starts to become decrease you needn't stress because execute out regarding how to enhance the decreasing of the 

https://goo.gl/EWSVKF

Sorry, this is a private entry which is only viewable by the owner.

[View Entry]

Sorry, this is a private entry which is only viewable by the owner.

[View Entry]

Debra Nichols Email
09/30/16

Location: Texas

How did you find this website? Looked up ACC on the internet

Comments:
I have a 13 year old daughter with C-ACC and now that we are in the teenage years, new challenges are developing. She is beautiful and has been learning about her differences. She tells people that she doesn't have a highway in her brain and that she has to take the back roads when learning new things. She says "I may not get there as fast as you but I'll get there"

Beth Trusty Email
04/09/16

Location: Zeigler, IL

How did you find this website? Pinterest

Comments:
I have a 3 month old son named Kal. He has c-ACC and I'm doing my best to learn absolutely everything I can about it. Our journey is just beginning and I want to be able to provide him with the best care possible. Your site has been very informational.

laurie damrose Email
02/23/16

How did you find this website? google

Comments:
Hi my name is Laurie and I am studying to be a teachers aide.I hope to learn more about helping children with condition,

Sorry, this is a private entry which is only viewable by the owner.

[View Entry]

Helena Thomas Email
11/30/15

Location: Laingsburg, South Africa

How did you find this website? google

Comments:
Very helpful and very inspiring!!

Doree Palic Email
04/22/15

Location: Plymouth Michigan

Comments:
Marked private and dont want it private. I dont know how to edit! Hahaha. Please email me would lovd to gain friendships!

Doree Palic 
04/22/15

Location: 1600 N. Territorial Road #38

How did you find this website? google

Comments:
My child was diagnoed with hydrocephalus atv24 weeks gestation? After his birth, an ultrasound was done by the high risk team to find a malformation. He was taken to a children's hospital to be diagnosed with complete ACC. He is now 14, but facing severe headaches.

Sorry, this is a private entry which is only viewable by the owner.

[View Entry]

Lisa Temperton 
08/05/14

Location: New Zealand

How did you find this website? Web

Comments:
My name is Lisa, and I have a beautiful 5 year old boy, who has complete agenesis of the Corpus Callosum (c-ACC), along with Asperger's type traits, and Haemophilia. He is my little Angel, but we have many challenges to keep his self esteem high and confidence high when the challenges are many in a state school. I guess I am seeking support from other parents out there who can help with telling me about resources to help educate my child given his uniqueness.  Many thanks, I hope I can also share some wisdom about my experience with other parents of uniquely wonderful children.

Sorry, this is a private entry which is only viewable by the owner.

[View Entry]

Jessie Li Email
04/20/14

Location: Calgary

How did you find this website? Google

Comments:
My son was 5 days old and the doctor found he is ACC during NICU by MRI scan in Canada.He stay NICU for  2 days and let us go home with isolated ACC. He was scheduled many appointments with pediatrician and neurologist. Me and my husband are very  depressed and hopeless with this shocking news. I couldn't help tearing these days...

Thanks for you to create this website for lots of useful information! I am hoping to help him develop as an independent and be a nice guy in the future, although some developmental delays may occur.Easier said than done, a long way to go...
Good luck and thank you to all!
Bless...

Anyone could send me some helpful links and therapy information is very appreciated!

Kama Stogsdill Email
04/12/14

Location: Wichita,Ks

How did you find this website? google

Comments:
Looking for others families and or some local groups to help us understand ACC, my son was diagnosis as a young child and is now 22, they are getting ready to do testing on him to see what mental age he is, they just did a inpatient seizure study on him and I seem to be getting no answers as to why my son has daily headaches and has so many intestinal issues, I need help and I recently met someone else that has a 9yr old daughter that has been diagnosis with ACC and is looking for help and answers. Thank you in advance

Rosemary Grossman Email
02/22/14

Location: staten island n.y

How did you find this website? google

Comments:
Hello, i wrote earlier about my 10yr old daughter Bryanna. the page cut me off so i had to write a new one. Im sorry. I really want,to help my baby. I feel like i get the same response from every doctor, "she will be ok it is a normal disorder" I dont want to leave this alone. My daughter is such a smart loving child, i want to help her and make sure she will,continue to be okay. That she will grow up to be whatever she wants, and not have doors close in her face. My family thinks shes fine and i should leave it alone, but its easier said then done. Im the only one who sees my little girl struggling at,school everyday. Please if anyone can,help me. Thank you so,much. God bless our angels!!

Rosemary Grossman Email
02/22/14

Location: staten island n.y

How did you find this website? google

Comments:
Hello, i wrote earlier about my 10yr old daughter Bryanna. the page cut me off so i had to write a new one. Im sorry. I really want,to help my baby. I feel like i get the same response from every doctor, "she will be ok it is a normal disorder" I dont want to leave this alone. My daughter is such a smart loving child, i want to help her and make sure she will,continue to be okay. That she will grow up to be whatever she wants, and not have doors close in her face. My family thinks shes fine and i should leave it alone, but its easier said then done. Im the only one who sees my little girl struggling at,school everyday. Please if anyone can,help me. Thank you so,much. God bless our angels!!

Rosemary Grossman Email
02/22/14

Location: Staten Island N.Y

How did you find this website? Google

Comments:
Hello, my name is Rosemary. My husband and I just recently found out that's our 10 year old has Agenesis of the corpus callosum. she has always had a learning disability, we thought it was a normal learning issue. Well she got really sick one day with meningitis and low and behold, they found in the cat scan, then in the MRI, that she was missing,her entire corpus collasum. It was heart breaking to us. Then they decided to run genetic testing on her and they found that she a rare Disorder that they couldnt even explain. Her chromosome 8 duplicated itself. Ive called the genetic specialist but,have not been able to make an appt. I really want to learn more about my babies disability. She has so many problems learning. She was held back in kindergarten, and 3rd grade, now they want to hold her back in 4th grade. She loves acting, she was able to land an extras job on the movie "Winters tale" with Collin Farell, but nothing more after that. Acting,is her passion. I want to try and get her more roles or print jobs so i can help her with her self esteem. Sometimes i get scared of her hurting herself because of her struggle to learn. I just recieved
 < Previous 20
Page:
Next 20 >  

Back to Agenesis Corpus Callosum - Angels Around The World